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Diversity and Inclusion (DEIA)

A Future Of Listening

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A Future Of Listening

Introduction to Autism Speaks

When Autism Speaks was founded in 2005, the autism landscape looked drastically different. Public understanding was limited. Screening options were scarce. Insurance rarely covered behavioral therapies. And families who received a diagnosis were often handed a pamphlet and sent on their way, forced to become experts overnight.

That experience was personal for Keith Wargo, the current President and CEO of Autism Speaks, whose own son was diagnosed more than two decades ago. “When he was diagnosed, we were given a diagnosis and little else. No roadmap. No coordinated support system,” Wargo explained. Like many families at the time, his support came from informal parent networks rather than institutional guidance. “Our shared journey, grounded in the experiences of our children and as parents, is what originally drew me to this work—and is what continues to keep the voices of the autism community at the center of all we do at Autism Speaks.” That hasn’t always been the case.

The Criticism of Autism Speaks And The Lessons Learned

Over the years, Autism Speaks has faced significant criticism—most notably from self-advocates—regarding its early focus on curing autism, portraying autistic individuals through a lens of fear, and failing to include autistic voices in leadership and decision-making.

But Wargo says that the feedback wasn’t ignored—it was transformative. “This is not a PR effort—it’s fundamental to how we operate and make decisions. If we’re serious about impact, we need to build solutions with, not just for, the people we’re working to support.”

This perspective has catalyzed a shift in the organization’s core mission—from one focused on early diagnosis and awareness to one that addresses support across the entire lifespan. As Wargo notes, “Autism is a lifelong condition, yet the support available to autistic adults is lacking.”

The data backs him up. According to the CDC, autistic individuals face a life expectancy of just 54 years, and only one in five people with disabilities—including autism—is employed. Autistic people are twice as likely to experience homelessness, and one in four families raising a child with autism faces food or housing insecurity.

Focusing On The Core Areas Where Autistic People Face Disparities

Autism Speaks is now focusing on three core areas where these disparities are most acute: healthcare, employment, and housing. And within each of those domains, the organization is elevating the voices of autistic individuals to help drive its agenda forward.

Dr. Andy Shih, Chief Science Officer at Autism Speaks, believes that meaningful progress for autistic adults will require long-term scientific investment. “We urgently need longitudinal studies that follow autistic people across their lifetimes,” he said, noting the absence of research on how autism intersects with chronic health conditions like cardiovascular disease, diabetes, and dementia. As the autistic population ages, Shih says, there’s a growing need to understand better how these conditions impact quality of life and life expectancy.

Despite recent advancements in early screening and evidence-based interventions, research on adulthood and aging in autism lags significantly behind. According to the 2021 National Autism Indicators Report, autistic adults frequently encounter healthcare systems that are ill-equipped to meet their needs, especially when it comes to coordinating care for co-occurring conditions. “We need to ensure that these studies are inclusive,” Dr. Shih adds, “especially of those with intellectual disabilities and individuals from underrepresented communities so that the results can drive equitable outcomes for everyone.”

True Equity And Representation of Autistic People

That emphasis on equity and representation is echoed by Eileen Lamb, Director of Social Media and Influencer Marketing at Autism Speaks—and an autistic self-advocate herself. Lamb is also the mother of two autistic children, including her eldest son, Charlie, who is nonverbal and has profound autism. “To me, true acceptance means including everybody—it doesn’t stop at level 1 autism or when it’s hard,” she said. For Lamb, meaningful inclusion means building systems that support both the gifted and the differently abled.

“Charlie has no sense of danger, which manifests in different ways like running in front of cars and eating non-edible items,” she shared. “He requires extensive support and will continue to as he gets older, but his life still has great value.” Through her dual lens as a parent and self-advocate, Lamb is helping guide Autism Speaks’ initiatives in expanding mental and physical healthcare resources, educating employers on inclusive hiring practices, and advocating for technologies that foster communication and independence.

Lamb also recognizes the importance of caregiver voices, particularly when those being served are nonverbal. “We need to invest in services and supports that allow all autistic people to be integrated into society—not just those who are able to advocate for themselves.”

Learning From The Past

Autism Speaks has not escaped its past—but its current leaders seem determined to learn from it. Its new strategic focus prioritizes autistic inclusion, not only in theory but in practice, with goals aimed at improving quality of life and extending opportunity across the spectrum. From leadership changes to investments in lifespan research and grassroots advocacy, the organization is working to rebuild trust where it once faced skepticism.

As Wargo puts it, “We can’t allow progress in early childhood to be where the story ends. Our responsibility is to make sure that every autistic person, regardless of their support needs, has the opportunity to live a full and supported life—at every age.”

That future, according to Autism Speaks, will be built not on speaking louder—but on listening better.

Conclusion

The journey of Autism Speaks reflects the broader evolution in understanding and addressing autism. From a starting point of limited understanding and scarce resources, there has been significant progress in diagnosis, awareness, and support. However, the organization’s history also highlights the importance of listening to and including the voices of autistic individuals and their families. As the focus shifts towards lifelong support and addressing disparities in healthcare, employment, and housing, the emphasis on equity, representation, and inclusion becomes paramount.

FAQs

  • Q: What was the state of autism awareness and support when Autism Speaks was founded in 2005?
    A: Public understanding was limited, screening options were scarce, insurance rarely covered behavioral therapies, and families often received little guidance after a diagnosis.
  • Q: What criticisms has Autism Speaks faced, and how has it responded?
    A: Autism Speaks faced criticism for its early focus on curing autism, portraying autistic individuals negatively, and lacking autistic voices in leadership. It has responded by shifting its focus towards support across the lifespan and emphasizing autistic inclusion in decision-making.
  • Q: What are the core areas where Autism Speaks is now focusing its efforts?
    A: The organization is focusing on healthcare, employment, and housing, with an emphasis on elevating autistic voices to drive its agenda forward.
  • Q: Why is longitudinal research important for autistic adults?
    A: Longitudinal research is crucial for understanding how autism intersects with chronic health conditions across lifetimes and for developing appropriate support systems.
  • Q: What does true acceptance and inclusion mean for autistic individuals?
    A: True acceptance means including everybody, regardless of the level of autism or support needs, and building systems that support both the gifted and the differently abled.
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Diversity and Inclusion (DEIA)

The New Face of DEI: What’s Changing—and What Still Matters

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The New Face of DEI: What’s Changing—and What Still Matters

In 2025, the landscape of Diversity, Equity, and Inclusion (DEI) is undergoing significant transformations. While some organizations are scaling back their DEI initiatives due to political and legal pressures, others are reaffirming their commitment to fostering inclusive workplaces.

Corporate Retrenchment and Rebranding

Several major corporations have reduced or rebranded their DEI efforts. For instance, Rolls-Royce has ended its formal DEI programs across global operations, replacing them with a new “employee voice network” open to all staff, reflecting a broader retreat from DEI initiatives amid political pressures . Similarly, Goldman Sachs has removed race-specific language from its diversity initiative web pages, particularly those promoting its “One Million Black Women” and “Black in Business” programs, amid increasing legal scrutiny and DEI rollbacks. 

Continued Commitment to DEI

Contrastingly, some companies are steadfast in their DEI commitments. Marriott CEO Anthony Capuano reaffirmed the company’s dedication to DEI, emphasizing that Marriott welcomes all and creates opportunities for all, values that will not change regardless of political climates. His public remarks drew widespread praise, resulting in 40,000 emails of support from Marriott employees worldwide.

Legal and Regulatory Developments

In the UK, the Business Disability Forum (BDF) faces criticism for not taking a clear stance on proposed disability pay-gap reporting reforms. The government seeks to mandate companies with 250+ employees to report pay disparities by disability and ethnicity, akin to gender pay-gap reporting. Although the BDF’s purpose is to dismantle barriers for disabled individuals, it has neither supported nor opposed the policy, citing concerns about unintended consequences.

Conclusion

The evolving DEI landscape in 2025 presents both challenges and opportunities. Organizations must navigate political, legal, and societal pressures while striving to create inclusive environments. By reaffirming commitments, adapting strategies, and engaging in transparent practices, companies can foster workplaces that value diversity and inclusion.

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Diversity and Inclusion (DEIA)

Why Inclusive Leadership Requires More Than Kindness

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Why Inclusive Leadership Requires More Than Kindness

Remember the phrase, “If you don’t have anything nice to say, then don’t say anything at all.” This saying has been encountered by many in various life experiences. Polite, kind, pleasing, and agreeable are terms Merriam-Webster uses to define nice. Those favorable terms can go awry if over-indexed. Amira Barger, Communications Expert, DEI Executive, and Author of The Price of Nice: Why Comfort Keeps Us Stuck—And 4 Actions for Real Change, unpacks the impact of niceness and provides solutions and frameworks anyone can benefit from.

The Price of Nice: An Interview with Amira Barger

Amira Barger’s upcoming book, The Price of Nice: Why Comfort Keeps Us Stuck—And 4 Actions for Real Change, explores how the social construct of “niceness” preserves the status quo and often stifles real progress. In it, she provides a practical four-part “Think-Feel-Do-Revisit” framework for readers to shift from defaulting to “nice” to acting with “nerve”—boldness, audacity, and courage to disrupt and take necessary action.

Defining Inclusive Leadership

Inclusive leadership is defined as leadership that is clear, honest, and growth-oriented because it doesn’t avoid hard conversations or dilute necessary feedback. It prioritizes the long-term development of the people entrusted to your care over short-term harmony or comfort. It is also about growing the ability, potential, and opportunity for the entirety of the organization and the team.

Understanding the Concept of Being Entrusted to Care

Being entrusted to care means seeing, understanding, and knowing the whole person and understanding that people have lives, dreams, and desires outside of the four walls of the workplace. This includes understanding the needs of employees, such as those who need to start their workday at 9:45 instead of 9:00 am because they are caregivers to children, or an ailing parent, or a spouse.

The Impact of Niceness on Feedback Conversations

An overly “nice” approach can prevent managers from being brave and clear during feedback, thus impeding employee growth. Nice can get in the way because it keeps us from being brave. A truly inclusive and impactful leader is someone who is intent on being clear, naming the behavior and the impact, and sharing specific examples of what needs to be done differently.

Choosing Nerve over Niceness

Nerve challenges, Nerve disrupts, and Nerve holds boundaries. Even if people call you difficult, disruptive, or angry, that’s Nerve. Inclusive leaders have the opportunity to utilize the insights shared in this interview to help better navigate the workplace as a change agent.

Conclusion

In conclusion, the concept of niceness can be detrimental to inclusive leadership and effective feedback conversations. By choosing nerve over niceness, leaders can create a more inclusive workplace and foster growth and development among their employees. As a next step, reflect upon and document the scenarios and interactions where niceness played a pivotal role and essentially impacted the ability to be as inclusive as desired.

FAQs

Q: What is the definition of niceness according to Merriam-Webster?
A: Polite, kind, pleasing, and agreeable.
Q: What is the title of Amira Barger’s upcoming book?
A: The Price of Nice: Why Comfort Keeps Us Stuck—And 4 Actions for Real Change.
Q: What is the definition of inclusive leadership?
A: Leadership that is clear, honest, and growth-oriented because it doesn’t avoid hard conversations or dilute necessary feedback.
Q: What is the concept of being entrusted to care?
A: Seeing, understanding, and knowing the whole person and understanding that people have lives, dreams, and desires outside of the four walls of the workplace.
Q: What is the definition of nerve?
A: Nerve challenges, Nerve disrupts, and Nerve holds boundaries.

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Diversity and Inclusion (DEIA)

Why the Success of ‘Sinners’ Proves Representation Drives Results

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Why the Success of ‘Sinners’ Proves Representation Drives Results

Ryan Coogler’s latest movie ‘Sinners,’ continues to dominate the box office and be a hot topic on social media as well. The film earned $48 million domestically in its opening weekend, which was the most successful opening for an original film this decade. In its second weekend, the movie only had a 6% drop in sales, in comparison to drops that are typically in the range of 40-50% in the second weekend. Thus far, this horror movie has already grossed over $160 million worldwide. Among the many fans praising the film and providing commentary on social media and Reddit were acclaimed actors Tom Cruise and Kevin Bacon.

Representation Matters

Representation has long been a topic of discussion in both media and marketing, as consumers continue to express their desire for more of it. One research study showed that 76% of consumers said representation in marketing is important for the brands they engage with and buy from. With Sinners’ predominantly Black cast and Black director, fans who are part of the Black community went out in larger percentage of numbers. This isn’t just the case for Sinners’. The same thing happened when a predominantly Black cast and director were introduced into the Marvel Universe with Black Panther. The film shattered records and as of 2018 when it was released, it was the highest-grossing superhero film of all time in the U.S.

Examples of Successful Representation

Black Panther was the first Marvel Movie many people saw, and it was a cultural phenomenon. Other underrepresented and underserved communities showed up to the box office in large numbers when there were casts that were predominantly from their culture. Crazy Rich Asians, which featured a predominantly Asian cast and director and was released in 2018, was the highest-grossing romantic comedy of the decade. And Coco, a movie produced by Disney Pixar and featured an all-Latino cast, was at the time the highest-grossing film of all-time in Mexico (beating out Avengers), and won two Academy awards.

Representation Doesn’t Limit Your Audience

Another common misconception that often prevents brands from engaging in making their marketing more inclusive is the notion that if you feature more people from underrepresented and underserved communities, you’ll limit your reach. The thought behind that belief is that if people who aren’t Black, Asian, or who have a disability see people who are Black, Asian, or have a disability in an ad, media, or film, they will feel like it “isn’t for them” and won’t engage. But that notion isn’t true, and the success of Sinners’ and other movies mentioned in the previous section prove that’s the case. While the Black community turned out in high numbers to see the Sinners’ film, the film wouldn’t have achieved the success it has if that community was the only group of people going to see it.

Broader Appeal

The film has had broad appeal with a broad diversity of audiences. That’s not just true in the U.S., but worldwide also. The film’s grossed almost $170 million worldwide, according to Box Office Mojo. Showcasing talent from underrepresented and underserved communities does not niche your content to only be relevant to those communities. There are plenty of examples of talent in both media and brand campaigns where talent from underrepresented and underserved communities have had mass appeal and often headline general market campaigns.

Consumers Want More Nuanced Stories And Depth Of Characters

Representation matters. But not all representation is created equal. One of the things consumers have said many times is their desire for characters who are like them, and that move away from traditional stereotypes and tropes. Consumers, particularly those from underrepresented and underserved communities want to see more main character energy from the talent brands and filmmakers put forth. One of the remarkable aspects of the Sinners’ movie is that it is an original story, a departure from the remakes and adaptations that plague Hollywood of late.

Depth and Originality

And through this original story, there are a number of different characters that have a degree of depth to them, that fans have been compelled to take to social media to process, share notes, and provide commentary. When you give people, especially those from underrepresented and underserved communities the kinds of characters and storylines they crave, they will help promote your product for you. The amount of earned media you’ll gain will skyrocket. The Sinners’ movie, like other standouts before it, showcased that if you give consumers what they want, they will reward you for it handsomely.

Conclusion

The success of Sinners’ and other films with diverse casts and storylines highlights the importance of representation in media. It shows that representation is not only important for underrepresented communities but also for the success of a film or brand. By showcasing diverse talent and telling original, nuanced stories, brands and filmmakers can appeal to a broad audience and gain a loyal following.

FAQs

  • Q: What is the significance of the movie Sinners’ success?
    A: The success of Sinners’ highlights the importance of representation in media and its impact on the box office.
  • Q: Does representation limit the audience of a film or brand?
    A: No, representation does not limit the audience of a film or brand. In fact, it can lead to broader appeal and a more diverse audience.
  • Q: What do consumers want from media and marketing?
    A: Consumers want nuanced stories, depth of characters, and representation that reflects their own experiences and communities.
  • Q: Can featuring underrepresented communities in media and marketing lead to commercial success?
    A: Yes, featuring underrepresented communities in media and marketing can lead to commercial success, as seen in the examples of Sinners’, Black Panther, and Crazy Rich Asians.
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